Koen, Age 4

Koen, Age 4

Koen is an adorable four-year-old boy who was born with a congenital genetic disorder (CTNNB1). He also experiences global developmental delays, meaning he is unable to stand independently still at age four, microcephaly, hypotonia and spasticity, trouble with feeding and swallowing (and is fed through a GTube), and sensory over-responsivity disorder.

Koen receives government-funded Occupational Therapy, Physical Therapy and Speech-Language Pathologist visits once a month. Even with these services, this is too little to take advantage of his neuroplasticity and make a difference. 

Koen has been approved as an amazing candidate for an intensive program at NAPA Center in Los Angeles. His program will take place over 3 weeks, 5 days a week. Each day he will have a 4 hour session, consisting of 2 Neurosuit hours, 1 CME (Cuevas Medek Exercise) hour, and 1 Feeding Therapy hour. 

We are so thrilled to be able to help Koen continue toward his goals of self-feeding and walking and standing on his own. Please consider making a donation today to help us continue to help children like Koen! 

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